May-A Month of Awareness 

Is it seriously May already!?😰 This month is Myalgic Encephalomyelitis, Fibromyalgia and Chronic Fatigue Awareness month- with May the 12th being the awareness day. May is also an awareness month for the following…

* Arthritis Awareness Month

*Ehlers-Danlos Syndrome (EDS)

* Better Hearing and Speech Month

* National Celiac Disease Awareness Month

* Cystic Fibrosis Awareness Month

* Lupus Awareness Month

* Melanoma/Skin Cancer Detection and Prevention Month

* Mental Health Month

* National Osteoporosis Awareness

* Preeclampsia Awareness Month

* Children’s Mental Health Awareness Week (first full week of May)

* National Neuropathy Awareness Week (second full week of May)

* World Autoimmune Arthritis Day (May 20)

* National Asthma and Allergy Awareness Month.

* National Stuttering Awareness Week (May 9-15)

* National Neuropathy Awareness Week (May 12-16)

ME is an illness that affects all body systems; predominantly the neurological, endocrine and immune systems. It is classified as a neurological illness in the World Health Organization (WHO) International Classification of Diseases. FM is a chronic disorder which features widespread musculoskeletal pain in the muscles, ligaments and tendons; causing intense pain and inflammation and poor temperature control. FS is not just tiredness! It’s utter exhaustion which is not relieved by rest or sleep. It causes cognitive malfunctions such as embarrassing temporary memory loss, brain fog and confusion. CFS is often associated with other autoimmune diseases such as ME and FM but can also be an illness on it’s own.

I will be educating and spreading more much needed awareness for the next 12 days. (Reposting {copying & pasting} from the last couple of years because I’m to sick to write this year😣)

The Symptoms: Neurological complaints — such as numbness, tingling, and burning — are often present with fibromyalgia. While the causes of these feelings is unclear for some central sensitisation is often the key problem causing numbness or tingling sensations in the hands, arms, or legs are felt by many people with this autoimmune disease.

The medical term for these sensations is paresthesia. The sensations usually happen at irregular times and are also associated with the 6 other pains in the picture below Including pressure points or localised areas of tenderness around the ligaments, tendons and joints.

Currently it is estimated that 250,000 (1 in 250) people in Britain alone are effected by Myalgic Encephalomyelitis, Fibromyalgia and Chronic Fatigue Syndrome. Which is a huge number of people living with an illness that is so poorly understood. Autoimmune diseases can affect all types of people at any age with approximately 25,000 young adults/teens becoming ill; and often for unknown reasons. It usually effects healthy and active people who want nothing more than be well enough to pursue their dreams as dancers or athletes. The cause is unknown, however in many cases the onset is linked to viral infections (e.g. Glandular Fever) and other triggers such as: an operation, a car accident or a vaccine injury- anything that can cause trauma to the body can trigger all three conditions. For some people the effects may be minimal, but the vast majority of the lives of those affected can be changed dramatically: schooling and higher education can be hugely disrupted, along with social and family life which can become near impossible to handle with a severe form of the above diagnosis’.

olation has a massive impact on the people affected, feeling disconnected from the ‘outside world’. More so when you’re wheelchair bound, house bound or bed bound. I personally have been confined to my bed, living within a darkened room for the most of the last 3 years…

The isolation becomes heartache.

Seeing the people you use to dance with improving their technique, or photos of friends together on days out without you and knowing that your peers are still in education is another type of pain which we have to endure on top of the physical and debilitating condition.

It hurts. Everything hurts.

#Myalgicencephalomyelitis #fibromyalgia #CFS #chronicillnessawareness

lnesses such as M.E and fibromyalgia can be progressive, degenerative, a chronic and relapsing. The fact is, sufferers remain susceptible to relapses for the remainder of their lives- M.E and Fibromyalgia are life long disabilities where relapse is always possible.

Cycles of severe relapses are common as further symptoms develop over time. Damage to the skeletal or cardiac muscles and other organs such as the liver, pancreas, endocrine glands and lymphoid tissues signify the further development of a lengthy chronic, neurological condition. Therefore diagnoses such as Postral Orthotatic Tachycardia Syndrome (POTS) and gastrointestinal disturbances such as IBS, IBD or Gastroparesis are usually likely.

e constant ignorance on behalf of the government, the medical industry (and the public) has had devastating consequences for those suffering with theses autoimmune diseases. The decades of abuse and neglect of the million or more people world-wide has to stop. The Stigma has to be broken. The ‘sick’ situation and those affected need to be acknowledged; we need research- plus the causation or trigger (of infection, bodily trauma or vaccine injury) should be recognised just as much as the condition itself… Most importantly, the able-bodied population should consider viewing our “situation” at different angles and perspectives before they judge, mock or demoralise those who want nothing more than to be ‘normal’ & ‘able’.

Will it take another 20 years? It’s the 21st century, how much more extreme does the suffering have to get? How many more 100’s an 1000’s of children and adults worldwide have to be effected? How many more patients will have to struggle needlessly or be horrifically abused or neglected before something is finally done? How many more patients will have to be told that there illnesses are in their heads or labeled as psychosomatic when the pain and symptoms are very real!!

It’s not a matter of ‘if’ us ME or autoimmune sufferers will win the battle for formal recognition and fair treatment, but it’s a matter of when! When is unfortunately entirely up to the authorities. If it was up to us sufferers and how hard we are willing to fight, then we would of fought and thrived by now. Surprisingly, the majority of people aren’t willing to do any of the fighting for us [despite us having science and REALITY on our side] nobody truly gets it until they get it. Hopefully one day there will be a breakthrough, and eventually our voices will be heard!

“The people that have the burning desire within will no doubt have the roaring fire to fight with all their might to tackle any battle and proudly win.” ~Chloe✨

Having these illnesses have basically changed my life. The way I look at the world. How I appreciate the smallest of things. I don’t take anything for granted. I view life at a completely different perspective, and I get easily pleased with the smallest of achievements! If I could turn back time I would really appreciate and be aware of every single step and every breath I took without tingling, numbness being in agony or collapsing. I’d appreciate the ability to eat food & cherish the taste {because I’m now tube fed directly via my bowel and I have severe allergies.} I’d appreciate feeling refreshed after sleeping. I’d appreciate freedom.

I loved my pain free life regardless, but now I have realised that I should’ve loved it much more. I never really realised how much I loved life, or how much I would miss my ‘old’ life until it was grabbed from me- leaving me in a world full of mystery and chronically sick has shattered my goals, plans and my dreams. Being unwell has taken my ability to (sometimes talk) walk and generally live, let alone follow my dancing dream and do various things a typical teenager should do. I missed out on the concerts, festivals, parties, theatre trips, college, uni, traveling adventures + so much more. I’d do anything to have the healthy life I had 6 years ago. I wish I could have my teenage years that had been stolen from me back…

However as much as I despise being so ill, ironically I would never erase the experiences which have come with the pain, sickness, heartache and all the horrible events that I have endured during my ‘teenhood’. Why? because despite a life full of hardship, hurt and negativity in addition to a bunch of severe diagnosis’ following from a vaccine injury; being unwell has come with many positives that strangely balance out the negatives.

My ‘new’ life created a new story with blank pages. ‘The Chronicles of Chronic Illness’ began. Each chapter was unexpected- I was forever wondering into the unknown with a variety of new adventures, new goals, new dreams and a brand new altered perspective on everything. I knew my story would be written and printed as new things occurred, its history; and no matter how much I would like it to disappear I know it can never been undone or deleted. That’s why I decided to find the best in every situation to create a story worth being told.<bver ending fight for my life has taught me an awful lot. I have witnessed and overcome many things that people will ever do in their lifetime. I have found happiness despite darkness and I’ve learnt how powerful that alone can be. I have discovered the inner strength that I never thought I had. I understand how much willpower, determination and endurance it takes to get through every minute of the day. I know who I am. I’m Chloe and I am a warrior. Life has mounded and sculpted me into the wiser, stronger, more educated and more thankful woman I am today.

“Life is unpredictable, but I am hopeful.” I Hope that one day suffering will end for me, and for everyone.